New post: 'A year with Visible Long-Covid Tracking'
Tracking Long Covid with Visible app: 1 year of health data. Insights & pacing strategies.
Recent searches
Search options
#healthdata
0 posts0 participants0 posts today
The April newsletter is out at https://europa.eu/!xxPNx6 
The draft topic texts for IHI call 11 are available and registration for the #IHICallDays is open
On events, we have a the #MedTechForum and a session on our #cancer projects coming up.
Read the report of our workshop on #HealthData and #DigitalHealth
Discover project successes on #vaccines and #LiverDisease
Meet new IHI projects READI and ENKORE
#IHITransformingHealth #HorizonEU #Health #Research #Funding
Replied in thread
6 & 7 May 2025 | 15:00-17:00 CEST
Register now for this event to transform your rare disease research question(s) into knowledge graphs! 
Register day 1: https://events.teams.microsoft.com/event/009dccd2-5c8f-465e-ad28-15056854f2e4@b89cc6a7-57a7-4137-8224-69e7ea0b1c55 Register day 2: https://events.teams.microsoft.com/event/8369a87a-64b3-4822-b2c5-c3cb3ea9a7c7@b89cc6a7-57a7-4137-8224-69e7ea0b1c55
3/3
events.teams.microsoft.comMicrosoft Virtual Events Powered by TeamsMicrosoft Virtual Events Powered by Teams
@asterisco why than did they Vote for the industry to get access to our health data WITHOUT our consent?
Parlament Vote of German Parties(German): https://www.piratomat.de/2024/04/eu-weiter-zugriff-auf-unsere-patientenakten-durch-behoerden-und-industrie-ohne-unsere-einwilligung
Context(English): https://www.patrick-breyer.de/en/pirates-call-for-a-halt-to-plans-for-the-eu-health-data-space-2
The #EHDS, which is now 'official', aims to unlock the potential of the safe and secure exchange, use and re-use of #HealthData in the EU. 
In IHI call 10, we have a topic on delivering frameworks, recommendations and other tools to support the implementation of the EHDS when it comes to the re-use of data for research purposes.
Find out more 
https://europa.eu/!c3xxWb
#IHITransformingHealth #HorizonEU
Faster diagnoses. Personalized care. Life-saving research. AI promises all of this—but only if we unlock the data. The fix? Open interoperability.
To learn more, read the full report: https://hubs.ly/Q038gfVy0
New Yorkers Deserve Stronger Health Data Protections Now—Governor #Hochul Can Make It Happen
With the rise of digital #surveillance, securing our #health data is no longer just a #privacy issue—it's a matter of personal safety. In the wake of the Supreme Court's reversal of Roe v. Wade and the growing restrictions on #abortion and gender-affirming care, protecting our personal health data has never been more important.
#scotus #roevwade #security #newyork #healthdata
Electronic Frontier Foundation · New Yorkers Deserve Stronger Health Data Protections Now—Governor Hochul Can Make It HappenWith the rise of digital surveillance, securing our health data is no longer just a privacy issue—it's a matter of personal safety. In the wake of the Supreme Court's reversal of Roe v. Wade and the growing restrictions on abortion and gender-affirming care, protecting our personal health data has...
What is IHI doing to help the European Health Data Space #EHDS become a reality? 
Our projects are smoothing the way towards the speedy & efficient flow of #HealthData to help find better therapies faster & treat patients quicker. Read more: europa.eu/!Xf4hJj
#IHITransformingHealth #HorizonEU
Do you have ideas on how to make the #EHDS a reality for the re-use of #HealthData for #Research? Apply for our IHI call 10 topic on the subject!
Details: https://europa.eu/!c3xxWb
#IHITransformingHealth #HorizonEU
This actually showed up 3 days ago I just forgot to post it. Flu and Covid levels are going up, so mask up!
#Covid19 #Infuenza #HealthData
https://substackcdn.com/image/fetch/f_auto,q_auto:good,fl_progressive:steep/https%3A%2F%2Fsubstack-post-media.s3.amazonaws.com%2Fpublic%2Fimages%2F453a12c2-e458-417a-b21e-95aea43b95d7_1600x1600.png?utm_source=substack&utm_medium=email
Continued thread
6/ Beyond articles, the CDC has already begun removing or altering health data on its website, including statistics on HIV and youth risk behavior. Experts fear this could distort public health efforts and hinder the ability to track diseases within key demographics. #HealthData #PublicHealthCrisis
A Look at Federal Health Data Taken Offline
https://www.kff.org/policy-watch/a-look-at-federal-health-data-taken-offline/
KFFA Look at Federal Health Data Taken Offline | KFFThis post looks at federal government databases with key health data that went offline on Jan. 31, 2025, including several related to HIV, some of which had returned by Feb. 2, 2025. It briefly describing the affected databases, which include widely used, large-scale national health surveys, indices, and data dashboards, that inform research, policy making, and media coverage about health care and public health.
#KRITIS Sektor #Gesundheit
US #healthcare provider #databreach impacts 1 million #patients
"Community Health Center (CHC), a leading Connecticut healthcare provider, is notifying over 1 million patients of a data breach that impacted their personal and #healthdata.
The non-profit organization provides primary #medical, #dental, and #mental health services to more than 145,000 active patients."
https://www.bleepingcomputer.com/news/security/data-breach-at-us-healthcare-provider-chc-impacts-1-million-patients/
BleepingComputer · US healthcare provider data breach impacts 1 million patients
IHI call 10 is open! DYK the topics contribute to several EU policies, incl. #GreenDeal, #chemicals legislation, #pharmaceutical strategy, #EHDS, #Digital strategy and more!
Want to get involved? 
Visit the call webpage https://europa.eu/!c3xxWb
#HorizonEU #IHITransformingHealth #HealthData #HealthResearch
ICYMI last week we launched IHI calls 9 and 10!
IHI call 9 - applicant-driven call - we want YOU to mine the IHI Strategic Research and Innovation Agenda for ideas for the perfect public-private project: https://europa.eu/!DQY8t4 IHI call 10 - a standard, two-stage call with topics on... 
#PFAS in healthcare... Secondary use of #HealthData in the #EHDS... 
Digital for #MedicalDevices: https://europa.eu/!c3xxWb
#IHITransformingHealth #HorizonEU
#IHICallDays On the agenda today: 
Call 9 Rules & Procedures @ 10:30 CET
Info session on call 10: safeguarding innovation in use of #HealthData in #EHDS @ 14:30 CET
There's still 
to register but you'll have to be quick!
https://europa.eu/!NF3CwM
#IHITransformingHealth #EUResearch #Horizon2020
We've got another week of #IHICallDays ahead! Join us: 
TUES: Call 9 session WED: Call 9 Rules & procedures
WED: Call 10 Secondary use of #HealthData in #EHDS
THURS: Call 10 Rules & procedures Find out more: https://europa.eu/!NF3CwM
#HorizonEU #EUFunding #HealthResearch #IHITransformingHealth
I just wanted to write a post about the most shocking major data leak fuckups revealed by awesome people at #38C3 but I can't because they just keep on adding new horrifying things 
This year, CDT CEO Alexandra Reeve Givens + @NPWF President @JocelynFrye wrote an op-ed in @techpolicypress advocating for lawmakers to close the #DataBrokers Loophole - preventing police from buying sensitive reproductive #HealthData w/o legal scrutiny. https://www.techpolicy.press/protect-reproductive-privacy-close-the-health-data-loophole/
Tech Policy Press · Protect Reproductive Privacy: Close the Health Data Loophole | TechPolicy.PressMillions are living under the specter of surveillance and criminalization for seeking, assisting with, or providing abortion care.
If the gov is competent in child health then data showing the effects of #Australia's ban on under 16s using (some) social media will be available within say 8 months max of the bans coming into force. And 3 months hopefully.
My confidence that the gov is collecting the relevant data adequately is low to middling.