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#LongCovid

389 posts68 participants1 post today
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gypsyvegan

While #LongCovid isn't mentioned specifically by name here -- I mean....

[For those unaware, the dance world is allergic to the word "Covid". No discussion of it in the present tense, no discussion of precautions, no acknowledgement that nearly all dancers have multiple high-risk factors for Long Covid, no mention of Long Covid as a reason for retiring which at this point has to have happened more than once. In ballet in particular, Covid has been deleted from reality. And so, therefore, have all the professional and aspiring dancers who do not want to risk their heath, livelihoods, and futures.]

dancemagazine.com/kinesthetic-

A black-and-white photo of a white man's head, neck, and upper chest. The man has a bald head, dark eyebrows, a dark short full beard, and dark chest hair. His eyes are closed, and he appears to be laying down, asleep.
#ballet#CovidSafeDancers#CovidIsNotOver
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Valerie Roney

I had a really fruitful mtg yesterday with an OT from the brain injury org my doc referred me to re the long term brain injury covid left me.
Lots of discussion around executive function limitations and my inability to manage interpersonal stuff in real time.

Ymmv, but in case you didn't know you could ask for that, you can ask for that.
Go on, shake that tree, help might fall out.
#longCovid #spoonies #brainFog #brainInjury

Replied in thread
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Bruce Mirken

@bicmay Certainly not most industrialized countries. And since we've abandoned all other forms of #COVID prevention (not me, but our gov't and most people), #vaccination is the last line of defense. And the data about #LongCovid is increasingly scary, e.g. increased rates of cardiovascular problems among children and adolescents.

Public
Denis - The COVID info guy -

Leading long COVID researcher fears it could become a national epidemic.

Dr. David Putrino: “We’re not taking any steps to reduce the risks of a nationwide epidemic”

"I’m really concerned about the overall effect this is going to have on national health when we’re not following the science"

“Your risk of going on to develop long COVID increases slightly with each infection, even if you recover just fine from the last infection”

#LongCOVID @auscovid19

Source: ny1.com/nyc/all-boroughs/news/

ny1.comLeading long COVID researcher fears it could become a national epidemicCDC data shows 5% of the adult population has long COVID right now.
Continued thread
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Douglas

One nice thing with the #Zepbound is my body is much less on edge and I'm pretty relaxed mentally which is a great change. Also my brain in general is functioning better. I am losing about 2lbs a week as well.

I guess I'll see what happens next week on Tuesday. Although we'll probably be doing a fair amount of driving and walking around this weekend, too.

#CFS#LongCOVID
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Andrew Gifford

From ThereForME:

"If you're in England, Wales, or Northern Ireland, living (or caring for someone) with Long Covid or ME/CFS and receiving PIP, UC, or ESA, we want to hear from you."

docs.google.com/forms/d/e/1FAI

Google DocsThe new proposed welfare reforms: understanding the impact on people with Long Covid and ME/CFSThis survey is for individuals with Long Covid (LC) or Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) who are receiving benefits affected by the government's proposed reforms. If the person is too unwell to complete the survey, a carer, if possible, is welcome to fill it out on their behalf. It is intended for residents of England, Northern Ireland and Wales only. Scotland has a different benefits system and requires a different survey. This survey was made in collaboration with Long Covid Support, Action for ME, ME Local Network and #ThereForME to understand the impact of the government’s proposed disability welfare reforms. Your responses will support our advocacy to the government for benefits that better support people living with these conditions. The survey has 31 questions, but not all may apply to you. We know this is a lot for people with ME/CFS and Long Covid. Each one has been carefully designed to give us meaningful data that strengthens our advocacy. Please take as much time as you need. Every question in this survey is completely optional, meaning you don't have to respond to specific questions if you don't want to. If you're signed into a Google account, your progress will be saved for 30 days so you can return to it later. By completing the survey, you are giving your consent for your anonymised responses to be used in advocacy and research communications by the following organisations: Long Covid Support, Action for ME, ME Local Network and #ThereForME. No identifying information will be shared, and all data will be handled in line with data protection best practices. Privacy Policy - Action for ME Privacy Policy - Long Covid Support If you're able to complete the survey by 24th April 2025, your responses can be included in a briefing we’re preparing for MPs. The final deadline for completing the survey is 30th May 2025, which allows us time to analyse all responses and incorporate the insights into our organisational submission to the Green Paper consultation. Regretfully, we are not able to provide and/or receive paper copies of this survey, due to the timescales involved. Thank you so much for your time and energy. This survey has been endorsed by the following organisations: Bury and Bolton ME/CFS & Fibromyalgia Support Group, ForwardME, Hope 4 ME Fibro Northern Ireland, Keyworker Petition U.K., Long Covid Advocacy, Long Covid Kids, Long Covid SOS, MERC PAG, Physios for ME and Supporting Healthcare Heroes UK, #MEActionUK, 25% ME Group.
#pwME#MECFS#LongCovid
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Anti. 🐘

Research Update:

· Three studies highlight the long-term effects of #COVID19 on children’s brains, kidneys, and cardiovascular systems
· Electronic health records of 6.5 million people showed notable differences and similarities between #LongCOVID and #MECFS myalgic encephalomyelitis (ME)
· NIH study assesses if the tracer 11C-PS13 — a molecule injected into the body before an imaging scan — can help identify inflammation in people with neurological Long COVID

thesicktimes.org/2025/04/15/re

The Sick Times - Chronicling the Long Covid crisis · Research updates, April 15 - The Sick TimesThree studies this week highlighted the long-term effects of COVID-19 on children’s brains, kidneys, and cardiovascular systems. The first, a small imaging study in Scientific Reports, showed potential brain alterations in children following “mild” COVID-19. The second study, in JAMA Network Open, evaluated the electronic health records of 1.9 million children and found that those
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Tom Kindlon

"the results from this analysis suggest among people who were tested for #COVID19, those with a positive test experienced an increased rate of diagnosis of infectious illnesses in the 12 months following"

thelancet.com/journals/laninf/

Image is from latest Science for ME weekly update

@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
@covid19 #Coronavirus
#COVID #COVID_19 #COVIDー19 #SARSCoV2
@auscovid19 #auscovid19

The Lancet Infectious Diseases Rates of infection with other pathogens after a positive COVID-19 test versus a negative test in US veterans (November, 2021, to December, 2023): a retrospective cohort study — Miao Cai et al. "the results from this analysis suggest that among people who were tested for COVID-19, those with a positive test experienced an increased rate of diagnosis of infectious illnesses in the 12 months following"
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