Deletion of family's #23andme data complete.
If you haven't done so already, do it asap to keep your generic data out of the hands of an unknown acquirer.
«#23andMe is potentially selling more than just genetic data – the personal survey info it collected is just as much a privacy problem»
I’d argue that data is even more problematic. They’ve always guarded the phenotype data that customers provide tooth & nail, probably as that’s where they saw the profit. Eg you could always download your genetic data, but not your survey responses. https://theconversation.com/23andme-is-potentially-selling-more-than-just-genetic-data-the-personal-survey-info-it-collected-is-just-as-much-a-privacy-problem-253220
#23andMe, c’est fini !
Que vont devenir les 15.000.000 de profils #génétiques collectés par l’entreprise ?
#Genetic data repo #OpenSNP to self-destruct before authoritarians weaponize it
The reason, according to #bioinformatics researcher Bastian Greshake Tzovaras, one of the founders of the project, is the dissolution of genetic testing biz #23andMe and the potential weaponization of genetic data by #farright #authoritarian regimes.
https://www.theregister.com/2025/04/01/opensnp_shutdown/
Bonus #Joke :
Q: What do you get when you inject human DNA into a goat?
A: Banned from the petting zoo.
(It's #HootinTootinTuesday again! Post some jokes or funny memes under this hashtag today, and bring lots of smiles to #Mastodon.)
A little late, but Week 13 of the #Privacy Roundup is here. I'm just going to blame it on this cold.
This edition features:
- #Signalgate #signal
- 23andMe's bankruptcy - what's it mean for user genetic data?
- A man banned for life from a venue... based on data collected about him
- Sandbox escapes for #Firefox and #Chrome exploited in the wild (updates available)
... and more!
We have decided to sunset openSNP at the end of April. While triggered by the sale of #23andme, @PhilippBayer @i_dabble & I had been thinking about this for a while.
Ultimately, we think that it's the most responsible act of data stewardship given the state of the world. I've written a retrospective of the last 14 years of the project:
Latest issue of my curated #cybersecurity and #infosec list of resources for week #13/2025 is out!
It includes the following and much more:
➝ DNA of 15 Million People for Sale in #23andMe Bankruptcy,
➝ #Trump administration accidentally texted a journalist its war plans,
➝ Critical Ingress #NGINX controller vulnerability allows RCE without authentication,
➝ #Cyberattack hits Ukraine's state railway,
➝ Troy Hunt's Mailchimp account was successfully phished,
➝ #OpenAI Offering $100K Bounties for Critical #Vulnerabilities,
➝ #Meta AI is now available in #WhatsApp for users in 41 European countries... and cannot be turned off
Subscribe to the #infosecMASHUP newsletter to have it piping hot in your inbox every week-end
https://infosec-mashup.santolaria.net/p/infosec-mashup-13-2025
#23andMe users struggle to delete their highly sensitive data
Who could have predicted this? Really, a lot of people. @404mediaco’s @jasonkoebler reports on how 23andMe’s bankruptcy has led to more than 50 class-action and state court lawsuits from around 35,000 people who are worried about what will now happen to their genetic data.
https://www.404media.co/dna-of-15-million-people-for-sale-in-23andme-bankruptcy/
How to Delete Your #23andMe Data
https://www.eff.org/deeplinks/2025/03/how-delete-your-23andme-data
I didn’t sign up to #23andMe, but I did to one of their competitors.
They didn’t advise any predispositions to illness—certainly none that I already knew to be common in my family—but it did remarkably pick up traits such as that I’m a morning person who dislikes pets, or foods containing coriander (cilantro) or chilli.
None of which are REMOTELY fucking true.
I can only imagine the legal hell that awaits insurers who rely on that service’s statistical models.
#DNA https://fediscience.org/@helenczerski/114234486421293619
@kubikpixel
Maybe people are trying to delete their #23andMe #data now bc they just realised what they've done in trusting this company in the first place?
#socialmedia companies like buzzfeed heavily promoted using dna testing companies
Reading contracts you're agreeing to in form of #privacy agreements or terms of use is not very common
Most of us spend loads of time in gamified environments, following cookie-trails like the happy little lab rats the companies want us to be