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#23andme

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«#23andMe is potentially selling more than just genetic data – the personal survey info it collected is just as much a privacy problem»

I’d argue that data is even more problematic. They’ve always guarded the phenotype data that customers provide tooth & nail, probably as that’s where they saw the profit. Eg you could always download your genetic data, but not your survey responses. theconversation.com/23andme-is

The Conversation23andMe is potentially selling more than just genetic data – the personal survey info it collected is just as much a privacy problemIf you were a 23andMe customer, your genetic and personal information could be used in civil or criminal cases, targeted advertising, medical discrimination and so much more.

#Genetic data repo #OpenSNP to self-destruct before authoritarians weaponize it
The reason, according to #bioinformatics researcher Bastian Greshake Tzovaras, one of the founders of the project, is the dissolution of genetic testing biz #23andMe and the potential weaponization of genetic data by #farright #authoritarian regimes.
theregister.com/2025/04/01/ope

The Register · Genetic data repo OpenSNP to self-destruct before authoritarians weaponize itBy Thomas Claburn

A little late, but Week 13 of the #Privacy Roundup is here. I'm just going to blame it on this cold. :blobcatsneeze:

This edition features:

- #Signalgate #signal
- 23andMe's bankruptcy - what's it mean for user genetic data?
- A man banned for life from a venue... based on data collected about him
- Sandbox escapes for #Firefox and #Chrome exploited in the wild (updates available)

... and more!

#privacymatters #cybersecurity #infosec #23andme

avoidthehack.com/privacy-week1

We have decided to sunset openSNP at the end of April. While triggered by the sale of #23andme, @PhilippBayer @i_dabble & I had been thinking about this for a while.

Ultimately, we think that it's the most responsible act of data stewardship given the state of the world. I've written a retrospective of the last 14 years of the project:

tzovar.as/sunsetting-opensnp/

a black and white photo of a person taking a photo out of car on the passenger-side, the person and camera are visible in the side-mirror
Bastian Greshake TzovarasSunsetting openSNP - a personal retrospective
More from Bastian Greshake Tzovaras

📨 Latest issue of my curated #cybersecurity and #infosec list of resources for week #13/2025 is out!

It includes the following and much more:

➝ DNA of 15 Million People for Sale in #23andMe Bankruptcy,

#Trump administration accidentally texted a journalist its war plans,

➝ Critical Ingress #NGINX controller vulnerability allows RCE without authentication,

#Cyberattack hits Ukraine's state railway,

➝ Troy Hunt's Mailchimp account was successfully phished,

#OpenAI Offering $100K Bounties for Critical #Vulnerabilities,

#Meta AI is now available in #WhatsApp for users in 41 European countries... and cannot be turned off

Subscribe to the #infosecMASHUP newsletter to have it piping hot in your inbox every week-end ⬇️

infosec-mashup.santolaria.net/

DNA of 15 Million People for Sale in 23andMe Bankruptcy, Trump administration accidentally texted a journalist its war plans, Critical Ingress NGINX controller vulnerability allows RCE without authentication, Cyberattack hits Ukraine's state railway, Troy Hunt's Mailchimp account was successfully phished, OpenAI Offering $100K Bounties for Critical Vulnerabilities, Meta AI is now available in WhatsApp for users in 41 European countries... and cannot be turned off
X’s InfoSec Newsletter🕵🏻‍♂️ [InfoSec MASHUP] 13/2025DNA of 15 Million People for Sale in 23andMe Bankruptcy, Trump administration accidentally texted a journalist its war plans, Critical Ingress NGINX controller vulnerability allows RCE without authentication, Cyberattack hits Ukraine's state railway, Troy Hunt's Mailchimp account was successfully phished, OpenAI Offering $100K Bounties for Critical Vulnerabilities, Meta AI is now available in WhatsApp for users in 41 European countries... and cannot be turned off

I didn’t sign up to #23andMe, but I did to one of their competitors.

They didn’t advise any predispositions to illness—certainly none that I already knew to be common in my family—but it did remarkably pick up traits such as that I’m a morning person who dislikes pets, or foods containing coriander (cilantro) or chilli.

None of which are REMOTELY fucking true.

I can only imagine the legal hell that awaits insurers who rely on that service’s statistical models.

#DNA fediscience.org/@helenczerski/

FediScience.orgHelen Czerski (@helenczerski@fediscience.org)Great stuff here from Adam Rutherford on the science (or not) of what 23andMe was actually doing & why. The real question is about the vast amount of genetic data they collected. It will get sold to someone - but who, and what will *they* use it for? https://www.theguardian.com/commentisfree/2025/mar/27/geneticist-mourn-23andme-useless-health-information
Replied in thread

@kubikpixel
Maybe people are trying to delete their #23andMe #data now bc they just realised what they've done in trusting this company in the first place?

#socialmedia companies like buzzfeed heavily promoted using dna testing companies

Reading contracts you're agreeing to in form of #privacy agreements or terms of use is not very common

Most of us spend loads of time in gamified environments, following cookie-trails like the happy little lab rats the companies want us to be